July 16 – It looks like no-go on treatment facility (but at least Ana is doing well)

Ana cheesin'

Ana cheesin’

Ana’s doctor changed her medication; she is back on Risperodol. This seems like a good thing. Her agitation is waaaaay down but now the Zoloft doesn’t seem to be working as her OCD/anxiety issues are surging. The self-injuring is down a lot. After our last little ER visit she seems to be thinking long and hard about hitting her head. I was very glad to discover that concussions can last for weeks. She needs a reminder about hitting her head.

So, the treatment facility in New Mexico seems to have hit a dead end. She receives Medicaid due to a waiver and we were told that after 60 days out of state the waiver will be cut. Hence, her Medicaid will be cut. She does not qualify for SSI or straight Medicaid because of our income. That puts us back at square one. I mean, really, in my head we’re playing Chutes and Ladders and we just landed on the real big ol’ slide.

At least summer is half over. Ana’s teacher is coming over twice a week to work on school work with her to keep her busy little brain stimulated (our district doesn’t offer year long school). She seems to really enjoy the one-on-one attention! We also started back with occupational therapy. We had to wait until they had a home-therapy opening because her behaviors were too bad to go to the site for therapy.

For the time we are keepin’ on keeping on. This is one of those times when things are relatively quiet and calm with Ana. I relish these times because I know it won’t be long until we are in another crisis. Parents without kids like Ana just don’t get the constant rollercoaster ride we ride in this house.

I’m glad they don’t.

For their sake anyway.

 

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